TY  - GEN
AU  - Taylor,Mark
TI  - Genetic data and the law: a critical perspective on privacy protection 
T2  - Cambridge bioethics and law
SN  - 9781107007116 (hbk.)
AV  - K3611.R43 T39 2012
PY  - 2012///
CY  - Cambridge, New York
PB  - Cambridge University Press
KW  - Privacy, Right of
KW  - Human genetics
KW  - Government policy
KW  - Human chromosome abnormalities
KW  - Diagnosis
KW  - Law and legislation
KW  - Biotechnology
KW  - Medical records
KW  - Access control
KW  - Data protection
KW  - Genetic engineering
KW  - Medical genetics
N1  - Introduction -- Privacy -- Genetic data -- The law -- Data in common -- Anonymity -- Human tissue -- Genetic discrimination -- Potential, promise and possibility
N2  - "Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection"--
ER  -