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005 20231129172433.0
008 130520s2012 enk 000 0
020 _a9781107007116 (hbk.)
020 _a1107007119 (hbk.)
035 _a200128643
040 _aDLC
_beng
_cDLC
_dYDX
_dBTCTA
_dUKMGB
_dOCLCO
_dYDXCP
_dBWK
_dCDX
_dBWX
_dOCLCO
_dDLC
_erda
041 _aeng
050 0 0 _aK3611.R43
_bT39 2012
090 _aK3611.R43 T39 2012
100 1 _aTaylor, Mark,
_d1973-
_986965
245 1 0 _aGenetic data and the law :
_ba critical perspective on privacy protection /
_cMark Taylor.
264 1 _aCambridge ;
_aNew York :
_bCambridge University Press,
_c2012.
300 _axiii, 232 p. ;
_c24 cm.
490 0 _aCambridge bioethics and law
505 0 _aIntroduction -- Privacy -- Genetic data -- The law -- Data in common -- Anonymity -- Human tissue -- Genetic discrimination -- Potential, promise and possibility.
520 _a"Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection"--
_cProvided by publisher.
650 0 _aPrivacy, Right of
_91314
650 0 _aHuman genetics
_xGovernment policy
_986966
650 0 _aHuman chromosome abnormalities
_xDiagnosis
_xLaw and legislation
_986967
650 0 _aBiotechnology
_xLaw and legislation
_986968
650 0 _aMedical records
_xAccess control
_986970
650 0 _aData protection
_xLaw and legislation
_986978
650 0 _aGenetic engineering
_xLaw and legislation
_986969
650 0 _aMedical genetics
_xLaw and legislation
_986971
942 _cBK
_2lcc