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999			_c200456901 _d75113
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005			20231109085730.0
007			cr nn 008mamaa
008			220831s2022 sz | s |||| 0|eng d
020			_a9783030976064
024	7		_a10.1007/978-3-030-97606-4 _2doi
040			_aTR-AnTOB _beng _cTR-AnTOB _erda
041			_aeng
060	0	0	_aWE 727
072		7	_aMJM _2bicssc
072		7	_aMED083000 _2bisacsh
072		7	_aMJM _2thema
096			_aWE727EBK
100	1		_aGarrido-Cumbrera, Marco. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
245	1	0	_aAxial Spondyloarthritis: Patient-Reported Impact in Europe _h[electronic resource] / _cby Marco Garrido-Cumbrera, Victoria Navarro-Compán, Christine Bundy, Raj Mahapatra, Souzi Makri, Carlos J. Delgado-Domínguez, Pedro Plazuelo-Ramos, Denis Poddubnyy.
250			_a1st ed. 2022.
264		1	_aCham : _bSpringer International Publishing : _bImprint: Springer, _c2022.
300			_a1 online resource
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
347			_atext file _bPDF _2rda
505	0		_aExecutive Summary -- About the Authors -- Introduction -- Objectives.-Methodology -- Demographic Profile of Survey Respondents -- Diagnosis -- Physical Health -- Psychological Health -- Social Support -- Healthcare -- Habits and Lifestyle -- Employment Status and Productivity -- Fears and Hopes -- IMAS European Survey Strengths and Limitations -- Glossary of Terms.
506	0		_aOpen Access
520			_aThis open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients’ clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society.
650		0	_aRheumatology.
650	1	4	_aRheumatology.
653		0	_aAxial Spondyloarthritis
653		0	_aPatient Reported Outcome Measures
700	1		_aNavarro-Compán, Victoria. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
700	1		_aBundy, Christine. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
700	1		_aMahapatra, Raj. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
700	1		_aMakri, Souzi. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
700	1		_aDelgado-Domínguez, Carlos J. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
700	1		_aPlazuelo-Ramos, Pedro. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
700	1		_aPoddubnyy, Denis. _eauthor. _4aut _4http://id.loc.gov/vocabulary/relators/aut
710	2		_aSpringerLink (Online service)
856	4	0	_uhttps://doi.org/10.1007/978-3-030-97606-4 _3Springer eBooks _zOnline access link to the resource
942			_2NLM _cEBK